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31st August 2017

update

My previous ortho doctor emailed me back.

In his words: “the Venn diagram for MHE [my disease, multiple hereditary exostoses] and hand is quite limited”. He has a suggestion of a tumor ortho to see at OHSU, but more as a reestablishment, in case I need to any other surgeries and for followups (my bone growths have a small chance of transforming into cancer, whee!) but probably won’t be helpful with this situation. I’m going to be emailing him just in case. The only hand tumor specialist that he knows is a doctor in New York City, so who knows when I’d ever get an appointment to see him.

I’m still waiting to hear whether my (ridiculous, worthless) insurance company to approve the capsule surgery, 10 days later.

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